Round 3 is well over now and I'm enjoying the window period immensely. Apparantely as a result of the cortisone, I have a more than healthy appetite and look as fat as a tick and robust as ever. No sign of skinny paleness or anything unnerving. I do feel a bit of a fraud and the funniest comment yet was, "Do you feel as if you're inthe wrong opera?" and then, 'Could you at least open the door in your dressing gown?' The generous Nussbaums Kosher Butchery, who delivered the elixir of chicken soup as a gift, would have been suprised to see me bounding out in my takkies.
We all enjoyed a happy visit from the Cox' from Durban and look forward to the arrival of Nicola (snr) and Anna Bashall from the UK next week.
Tim has had a dreadful two weeks. The pressure on him from all fronts is bordering unbearable.
The children are doing well but the odd flash point indicates a strong underlying tension.
Sue Cooke's daughter in law, Vessie, just happens to be a very clever post doctoral member of the Harvard Medical School. She works with the doctors who are developing a new drug for Melanoma cancer called Ipiluminab. It is the only fledgling break through in 40 years. She has generously taken on my case and I am hoping to initiate the process of getting authorisation to use this drug so that, should I need it, we won't have to waste time, which is plainly of the essence. Trials have shown up to one year of extension of life. As long as it's good qulaity of life, I'm in the market for whatever is going and have promised to do my best.
Darling child, you keep focussing on achieving that good quality of life. Big hug to that wonderful husband of yours. It's tough on the rellies to watch their loved one hurting. But wonderful that the rellies are all rallying round. Lots of love, Fiona
ReplyDeleteHi Margi B
ReplyDeleteLoved talking to you the other eve. Glad to hear you're kicking ass, as per instructions, instead of answering the door in your dressing gown. If you do feel empowered to put on a gown, show your appreciation of the chicken soup by making it a gold one at least. Please.
Frankie.
love as ever. xxxxxxxxxxxxxxxxxxxxxxx
Dearest Margi
ReplyDeleteAt last I have mastered the art of signing on and can send you a message (I think). I was so pleased, if not surprised, to see from your blog how you are facing this all with your regular feistiness. I think of you in all the ups and downs this immense challenge brings. In your family you have the dream team - such an asset. I hope you won't begrudge yourself (or them) the opportunity to spoil you. You have given so much in terms of hospitality and love and support to others, including my son Ben. You surely surely deserve back some of all that love and kindness you've put into the worl. I think of you in your golden dressing gown, and of your beautiful family, and send much strength to you and Tim and the children. lots and lots of love Bev R
Dear Margi and Tim (hope I can include him in your blog!)
ReplyDeleteI am not doing very well at sending you this message - I have retyped it twice and it doesn't seem to be going through - third time lucky!!
You have both been so brave and you have taken on this challenge with such "gusto". I just wanted you to know that we are thinking of you so often.
Your trip to Nottens looked great. The bush is so good for the soul. My favourite time is sitting by the campfire and listening to the evening's sounds. It looks like you had wonderful family time.
I hope that the fourth round of chemo is not too grim!
Please send our love to Tim and Alistair.
Lots of love
Mandy xxxxxxxxxxxxxxx
Dear Margi
ReplyDeleteWishing all of you lots and lots of strength - your positive and uplifting demeanour is a wonderful lesson to us all. Love Jenny Louw
Hi Margi
ReplyDeleteWho knows if I finally get this right - third time lucky! Love reading your blog and how you are doing - as always, your sense of humour and intense connectedness with your family shines through... with lots of love from all the JS-W's : Jess back so happily in Fuller, and spotted James at hockey practice last week!; John on AIDS tour up in Mozambique; Julz coming up the home straight for confirmation and looking forward to 'trying' out St Martin's; Juz so happy in Grade 6; and Jackie x x x