I've had all 4 of the treatments of Ipi now and after what has felt like a long period of chronic fatigue, I'm beginning to feel human again. Just as well, as there are several wonderful end of matric functions to attend and I need to be on top form to enjoy them fully. Each continues to be a moment of quiet triumph, having dreaded missing them.
I will have a CT scan in about a month to see how those tumours have responded to Ipi. Further decisions will be made then and I've been well trained to live in the present and not worry about what might or might not happen until it does. It seems that various parts of my endocrine system have taken a knock, and strong homeopathic support is allowing a good recovery. I have learned that being born with O positive blood is much in my favour in terms of my ability to bounce back after a knock.
Tim has long leave this year, so we have all sorts of exciting ideas about how to max out on the special time. As Ali starts at university next year, this will be the first January in 21 years when we aren't bound by school terms. We are hoping to have a couple of weeks when all 5 of us can be together, Nic's job and ever tight leave situation willing. The planning is so much fun and our ideas have been wild and at times horribly expensive.
In the interim, we need to batton the hatches and get the house running military-style to give Ali his best shot with matric. He has been offered a place in the BMed Sc Biomed ( a shadow medical degree, which could allow transition into medicine in second year provided that exceptional results are achieved) at Wits next year and he is still being considered for a place in medicine, which will be dependent on his matric results.
James writes his final Business Science exams in a few weeks and we're planning with delighted anticipation to go to his graduation on 14 December.
My amazing mum has flown off to England again this evening. She is going to see my special Aunt Ro and then on to see her dear Grandfather Friend, Norman. As the children say, high praise indeed, Granny is a legend!
Great news Margi and please wish Ali all the very best and lots of love.
ReplyDeleteDear Margi, thank you keeping us all informed. It's wonderful to read about your splendid morale and high spirits, and the adventures of your magnificent family. I couldn't agree more -- Gilly is indeed amazing -- she is far and away my favorite cousin! Much love, Liz Hagen
ReplyDeleteHello Margs,
ReplyDeleteThank you so much for your updates. Lovely pics! and very good luck to Ali for Matric!! It was so special seeing Nicola at the Bashall get together at Martin's. All our love, Bremners xxx
Hi Margie,
ReplyDeletehope this email finds you well.
I came across your blog while searching the Ipi drug for my Mom who has secondary Liver Cancer.
I would love to get in contact with you, could you please contact me on melpennells@mweb.co.za , 0794236582
thanks
melissa
Hi Margi,
ReplyDeleteAt last - I've found another South African with advanced stage melanoma cancer! I've had it myself for around four years. Five operations so far, but no chemo. Haven't lost my sense of humour yet though. My wife (also Margi)was particularly delighted to find your blog, since you give the kind of detail that us men aren't so good at providing. We look forward to following your blog further, and so hope and pray that the latest treatment improves and stabilises you a great deal.
Brian